The governorship-approved aid campaign, which was launched to raise the 2.9 million dollars required for the treatment of Levi Cafer Nacak (6), who lives in KONYA and struggles with the fatal muscle disease Duchenne Muscular Dystrophy (DMD), was completed with the support of volunteers. Cafer, who returned to Konya after a difficult 98-day gene therapy process in Dubai, released a balloon into the sky at the celebration held for him.

Levi Cafer Nacak, one of the two children of mechanical engineer Haluk Ramazan Nacak (40) and child development teacher Güler Nacak (33) in Konya, started walking on his tiptoes at the age of 4. As a result of the examination and tests carried out upon the attention of the family, Cafer was diagnosed with DMD, which is seen once in a million at the age of 5. The family started a campaign with the permission of Konya Governorship so that their son could access gene therapy, one of the most expensive drugs in the world. The campaign, which had intense participation, was completed in 2.9 million years. Gene therapy was applied to Cafer, who went to Dubai with his family. A balloon flying event was organized in Konya for Levi Cafer Nacak, who returned home. Cafer celebrated his victory with balloons he released into the sky.

Haluk Ramazan Nacak, who stated that they fought hard for their son to hold on to life, stated that they left behind a difficult 98-day period in Dubai and said, "Our departure to Dubai was March 27, 2026. We stayed there for a total of 98 days and returned on July 3 after our treatment. When we first went, we were very nervous. It was not even clear whether we would receive the medicine. That first three-week waiting period was extremely stressful for us. When the order for our medicine was finally placed, we felt a great relief. Approximately after the order. "After 10 days, we had our gene therapy," he said.

Stating that a very sensitive and difficult quarantine period awaited them immediately after the treatment, Nacak said, "During this sensitive quarantine period, we were only allowed to approach our child with a mask and gloves to prevent infection. As parents, it was really very challenging to approach our child in this way, which we could not bear to smell. Then, doctor's checks and our ongoing intensive physical therapy process began. In this process, first of all, we would like to thank our Lord. We would like to thank everyone who made the slightest contribution. When we return home, our check-ups continue. At the same time, our check-ups continue. "We will continue physical therapy. Cafer has moved on to the 2nd grade at Şehit İbrahim Betin Primary School and hopefully he will continue his education from where he left off," he said.

'HE CAN STEP ON HIS HEELS WHILE WALKING ON HIS TOES'

Stating that they happily observed the rapid improvements in Cafer's health after returning home, father Nacak said, "There is a significant improvement in Cafer's blood values ​​after the treatment and there are wonderful changes that can be seen physically. For example, while he used to walk completely on his toes, now he can step on his heels. Thank God, he is no longer waking up from sleep due to pain. Some muscle groups that were constantly contracted have softened. He is in a very good mood and joy. We believe that he will get better with God's permission."

Volunteer Sevilay Hatırnaz from Izmir, who built the aid bridge from Izmir to Konya and is one of the biggest supporters of the campaign, stated that she could not hold back her tears after Cafer received his medicine. Hatırnaz said, "About a year ago, I witnessed this silent struggle for life in Konya. Our only wish was for Cafer to get his vital medicine. I decided to do my best on this journey. Throughout our journey, we experienced very difficult days from time to time, we were very sad, we shed many tears, but we never lost hope. Because our greatest strength is the power of Cafer who clings to life tightly and the unshakable power of the big-hearted people who believe in him." "We said 'The name of our hope is Cafer' and that hope blossomed today," he said.